Rare disease awareness and education
Public education initiatives to improve understanding of rare and genetic diseases across African communities and health systems
Rare diseases remain largely invisible across Africa, not because they are uncommon, but because they are poorly understood. Many patients spend years navigating health systems without recognition, diagnosis, or appropriate care.
The African Rare Disease Research Centre (ARRC) leads evidence-based awareness and education initiatives designed to bridge this gap. Our work focuses on translating complex scientific and clinical knowledge into accessible information for communities, healthcare professionals, educators, and policymakers.
Through targeted campaigns, public dialogues, professional engagement, and alignment with global initiatives such as World Rare Disease Day, ARRC works to reduce stigma, challenge misconceptions, and elevate rare diseases into national health conversations.
Awareness is not advocacy alone—it is the first step toward diagnosis, equity, and action..