Policy & Health Systems Engagement
Integrating rare diseases into national health and disability frameworks.
Rare diseases often fall outside conventional health policy structures, leaving affected individuals without formal recognition, protection, or coordinated care. In many settings, rare conditions are subsumed under broad disability or chronic disease categories without tailored response.
ARRC engages policymakers, institutions, and stakeholders to promote the formal recognition of rare diseases within national health, disability, research, and social protection frameworks. Our approach is evidence-driven and collaborative, emphasizing sustainable systems solutions rather than short-term interventions.
Effective rare disease response requires policy visibility, institutional coordination, and long-term commitment.