Advocacy for Equity & Inclusion

People living with rare diseases frequently face social exclusion, mislabeling, and marginalization. These challenges extend beyond healthcare into education, employment, and community life.

ARRC advocates for equity-centered approaches that recognize rare disease patients as individuals with legitimate medical needs and social rights. We work to reframe rare diseases not as anomalies, but as integral components of population health diversity.

True inclusion begins with recognition, respect, and informed systems of support..